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Straight Talk on Clinical Trials: Informa Pharma Intelligence and Rare Patient Voice


Join co-moderators Mike Wenger of Informa Pharma Intelligence and Wes Michael of Rare Patient Voice as they present key findings from a recent survey taking the pulse of patient perspectives on clinical trial participation. In a friendly & live conversational format, they will discuss the findings with a panel representing patients and advocates. Hosted by the Center for Information and Study on Clinical Research Participation (CISCRP).


  • Mike Wenger, Vice President of Patient Engagement, Informa Pharma Intelligence, Co-Moderator
  • Wes Michael, Founder & President, Rare Patient Voice, Co-Moderator
  • Steve Jones, President, EU-IPFF (European Idiopathic Pulmonary Fibrosis & Related Disorders Federation), Panelist
  • Ashley Smock, Patient Panelist
  • Sarah Nechama Frisch, Patient Panelist

Panelists will discuss:

  • Gaining a deeper understanding of the patient journey
  • Discovering reasons for non-participation in clinical research
  • Gleaning insights from a recent survey of patients on their perceptions of clinical trials
  • Identifying ways sponsors, advocacy organizations & recruitment companies can refine the enrollment process


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